Show simple item record

dc.contributor.advisorPotthoff, Meghan
dc.contributor.authorHarmon, Adam
dc.date.accessioned2021-05-04T17:31:01Z
dc.date.issued2021-05-14
dc.identifier.urihttp://hdl.handle.net/10504/130374
dc.description.abstractCongenital heart defects in the pediatric population are increasing in prevalence. As a result of these diagnoses, cardiac patients are at a higher risk of death, with or without surgical interventions. Patients and families need to be prepared for these adverse events and be educated on the potential interventions that could support symptom control and facilitate decision-making, when the patient nears end-of-life. The pediatric population is undereducated in the realm of advance directives and multiple barriers prevents these conversations. The purpose of this project is to start the conversation around advanced directives earlier and intervene during inpatient admissions at the age of 14 and older to provide education on advance directives, as the patient’s health declines. There were a total of ten eligible patients identified for this project and one patient completed the Advance Directive Toolkit that resulted in the creation of an advance directive. There was a 43% completion rate among registered nurses in the pre-post surveys and online education. Results showed that the project was successful in initiating the early palliative care conversations, however, there are still barriers to completing these conversations that include lack of education among nursing staff and families, lack of education materials for patients, and the fear of delivering “bad news” to patients and families.en_US
dc.rightsCopyright is retained by the Author. A non-exclusive distribution right is granted to Creighton Universityen_US
dc.subject.meshAdvance Directivesen_US
dc.subject.meshPediatricsen_US
dc.subject.meshPalliative Careen_US
dc.subject.meshCardiovascular Diseasesen_US
dc.titlePediatric Cardiac Advance Directives: Early Intervention Palliative Care Conversationsen_US
dc.typeManuscripten_US
dc.rights.holderHarmon, Adam
dc.rights.holderPotthoff, Meghan
dc.embargo.liftdate2022-05-14
dc.embargo.terms2022-05-14
dc.degree.levelDNPen_US
dc.degree.disciplineDoctor of Nursing Practice (DNP) Programen_US
dc.degree.nameDoctor of Nursing Practiceen_US
dc.degree.committeeGross-Toalson, Jami


Files in this item

Thumbnail

This item appears in the following Collection(s)

Show simple item record