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    African American Heart Failure Patients’ Perspective on Palliative Care in the Outpatient Setting

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    Date
    2014-06-03
    Author
    Lem, Ashlea A.
    Schwartz, Misty
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    Abstract
    ABSTRACT
    Background: Heart failure (HF) is a progressive, incurable, complex disease that limits both the physical and psychosocial qualities of life (Francis, Sonnenblick, Wilson Tang, & Poole-Wilson, 2008; Goldstein & Lynn, 2006). It is recommended that palliative care be used in conjunction with HF care guidelines to optimize the care of HF patients throughout the trajectory of the disease (Goodlin, 2009b; Jaarsma et al., 2009; Stuart, 2007).

    Purpose: To explore from the patient perspective, the understanding of, and feelings toward, palliative care in African American HF patients in an ambulatory cardiac care setting.

    Methods: A qualitative study using semi-structured interviews of 13African American HF patients from an ambulatory cardiac care center.

    Results: Overall, none of the 13 participants had heard of palliative care prior to the interview. After an explanation of palliative care was provided, 10 of 13 (77%) felt having palliative care involved in their HF treatment would be beneficial. Additionally the following three main themes emerged: 1) improved quality of life, 2) need for strong patient-provider relationships, and 3) need for ongoing education about the trajectory of their HF.

    Conclusion: Based on patient responses, early intervention of palliative care is needed in HF treatment to provide further emotional and psychosocial support, as well as relief of symptom burden. Participants expressed a need for strong patient-provider relationships and to have on-going education regarding their disease trajectory. Further research is needed to evaluate early palliative care intervention, patient satisfaction, and quality of life outcomes in the course of HF treatment.
    URI
    http://hdl.handle.net/10504/49982
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